We’ve all heard the old adage “a picture is worth a 1000 words.”
I think we all have pictures in our mind of things just working. I’d like to focus on the picture in my mind’s eye of healthcare.
I recently was diagnosed with H1N1. That variant of the flu was the worst I’ve ever had. I have never felt so sick, been incapacitated for so long, and have never visited the ER for my own treatment. It is quite different being the patient with the IV in one’s arm than being the support system for the patient.
The triage nurse asked the standard set of questions. Thinks like “what medications are you taking daily” and “are you allergic to anything?” I know many of us probably know these questions by heart. Sometimes I want to just say “Yes to #1, No to the rest.”
So here comes my mind’s picture. I already know what medicines I am taking. I already know my immunizations and allergies. So, why do I need to go through a long(ish) questionnaire when this information is readily available through electronic communications? This is what we’ve been trying to solve for years at PatientCentral.
Here are some things that have already been solved requiring electronic data exchanges:
- Pulling my credit report and merging all 3 reporting agencies data into a single document.
- Determining where to route the call to my cell phone even though I’ve switched carriers several times and have retained the original number.
- Issuing a credit to a store when I pay by credit card or draft. This is in the virtual world and brick and mortar.
- Pharmacies know when I pick up an RX what the entire bill will be before I leave. (wouldn’t that be nice if you visit the doctor and know before you leave what the bill will be?)
Seems like we should be able to have one’s health information move around the ether and be available when we need it. I visit one care provider and next month I visit another. They both use electronic systems to enter my vitals and progress notes, but why can’t they see the other’s data? Why do they rely on me reciting the data back to them? Isn’t that inherently unreliable?
I picture all care providers being able to access my information, with my consent, and having a unified view of my medical information. Seems easy, but why aren’t we doing it? Most vehicles take unleaded right? Can’t we just use some common fuel for the medical engine?
Turns out we can’t. Whether it be politics (hospitals and care providers are intensely political and don’t like to share when they don’t have to), technical challenges, fiscal challenges, willpower or just plain laziness there are many reasons it is not being done today. Some say that it can’t be done. It is too daunting. It is too large.
Well, when faced with such monumental challenges it pays to break things into manageable chunks to process and have successes. That is what is happening now with the stimulus dollars funding health information exchanges (HIE’s). The feds are asking the states to come up with a plan and help organize the regional activity. I know many states operate exchanges. Soon, we will all be able to see how HIE’s will benefit us. After HIE’s are up and running we will see Regional Exchanges, and ultimately, we will see the national exchange. We are all mobile, right? I could live in NY and work in DC, right?
So what do we do in the interim? There are plenty of stories about people running into brick walls and suffering. For instance, I heard this story http://www.npr.org/templates/story/story.php?storyId=120028213 on the radio about a woman and her husband with cancer and how treatment was delayed because of a hospital transfer. The crazy thing to me is that in an electronic environment this poor woman was told to wait 21 days to get a copy of the medical record. Isn’t that one of the point’s of electronic systems – to be able to access it immediately?
This is just plain laziness and poor policy. Information is available immediately, and as the owner of the data you should see and have access to it immediately. MyHealthArchive is a personal health information management system that can collect this information in real-time from a wide range of sources. Imagine if this person could pull up the information from MHA and let the new care providers make assessments immediately. How much suffering could have been avoided?
Back to my hospital visit. I was treated and out the door in under 2 hours. My information is all recorded before I left. I received printed copies of my discharge notes. Everything is stored in servers. If I go to visit my regular doctor can he see the information? No. Is this my information? Yes.
Let’s get the word out that your information is available and may be stored under your care for your treatments.